Visiting “the big robot” as a 5 year old

Today was Lily’s yearly MRI, and it seems fitting that my “Big Medical Tests – When Kids Have to Be Brave Beyond Their Years” post from last year popped up in my memories on Facebook. This year, her brave pillow looks much more worn, and her face looked super nervous as we entered the hospital for the […]

Big Medical Tests: When kids have to be brave beyond their years

In early November, time came for Lily’s yearly spine and brain MRI. This test starts to stress me out months before it happens. It’s an hour and a half long (so so so long for a little kid), and each time we hope for the best (all is stable), while knowing that one of these […]

What does a peanut have to do with special needs parenting?

When tackling a herculean task, the people I work with will sometimes say “we just need to push the peanut forward.” I know, it’s a strange phrase, but I love the concept. What the saying means is that when a challenge is overwhelmingly large, and it feels like ultimate success may not ever be achieved, we should focus […]